{"id":1536,"date":"2022-03-31T14:55:41","date_gmt":"2022-03-31T19:55:41","guid":{"rendered":"http:\/\/capertongillett.com\/blog\/?p=1536"},"modified":"2024-11-21T18:29:37","modified_gmt":"2024-11-22T00:29:37","slug":"your-handy-autism-month-messaging-guide","status":"publish","type":"post","link":"https:\/\/capertongillett.com\/blog\/your-handy-autism-month-messaging-guide\/","title":{"rendered":"Your handy Autism Month messaging guide"},"content":{"rendered":"
\n
\"A
“Shut up for a sec, I’m solving autism.”<\/figcaption><\/figure>\n<\/div>\n\n\n

So, April 1 is the first day of World Autism Month, also known as Autism Awareness Month, also known as Autism Acceptance<\/em> Month, also known as \u201cWelp, Here We Go\u201d Month among autistic people who appreciate that folks are at least trying their best.<\/p>\n\n\n\n

Why “welp”? Because even well-meaning people don’t always get things right, and it’s not uncommon to see a lot of stereotypes reinforced, assumptions made, and actually autistic people talked over during this particular month of the year. Not maliciously. Just because.<\/p>\n\n\n\n

If your organization is one of those that likes to celebrate Months, that\u2019s cool! That\u2019s very thoughtful of you. In honor of your thoughtfulness, I thought I\u2019d provide a few tips for making sure your autism-related messaging efforts are of the accurate, societally beneficial, not-insulting-or-patronizing variety. Because I care.<\/p>\n\n\n\n

So here are a few ways to make your Autism Month content the kind of stuff actual autistic people will want to share with their friends.<\/p>\n\n\n\n

Go with \u201cAcceptance\u201d rather than \u201cAwareness.\u201d<\/h2>\n\n\n\n

Why? Because in practice, \u201dawareness\u201d is generally reserved for stuff people don\u2019t like. Ovarian cancer. Colorectal cancer. Deep vein thrombosis. Things we\u2019re supposed to look out for so we can catch them early and cure them before they make you dead. You can probably see why autistic people, in general, resent being placed into that category. This thing that has heavily informed how I developed and who I\u2019ve become needs to be hunted down and eradicated so there can\u2019t be any more people like me.<\/em><\/p>\n\n\n\n

Cool.<\/p>\n\n\n\n

\u201cAcceptance,\u201d on the other hand, frames autism in a more positive light and encourages, like\u2026 acceptance. It doesn\u2019t imply that being autistic is universally hunky-dory and autistic people never experience challenges, even significant ones, because of their autism. It doesn\u2019t imply that everything is super-cool and we don\u2019t need support. But it encourages the general public to see autistic people as valuable, valid members of society, with lots to contribute, and not weirdos to isolate and pity. And it encourages autistic people to accept and value themselves, too. All good things.<\/p>\n\n\n\n

Use identity-first language.<\/h2>\n\n\n\n

Why? Because overwhelmingly, autistic people prefer it<\/a>. (That\u2019s what \u201cidentity-first language\u201d is \u2014 saying things like \u201cautistic person,\u201d rather than \u201cperson with autism,\u201d which is an example of \u201cperson-first language.\u201d) Autism isn\u2019t like a sweater that can be taken off or a tumor that can be excised or a clutch purse that can be set down \u2014 it\u2019s literally the way our brains developed and function. It might not define us, but it is integral to us.<\/p>\n\n\n\n

(None of this is to say that there aren\u2019t people with autism who themselves use \u201cperson with autism,\u201d and if that\u2019s how a person identifies, we should absolutely go with it. But as a default, statistically, you\u2019re not likely to go wrong with \u201cautistic person.\u201d)<\/p>\n\n\n\n

Look beyond puzzle pieces.<\/h2>\n\n\n\n

Why? Because they\u2019re not necessarily great for autistic people. The use of a puzzle piece to represent autism actually started in 1963, with the logo of the National Autistic Society in London<\/a>. The puzzle piece symbolized how autism is a puzzling condition (get it?) and also included a picture of a crying child to illustrate how horribly we suffer. So\u2026 there\u2019s a lot there. And even as it\u2019s been used in different ways since then, with different meanings applied to it, it\u2019s controversial \u2014 some autistic people resent the implication that we\u2019re puzzling, have missing pieces, are<\/em> missing pieces, don\u2019t fit in\u2026 To be sure, some autistic people (and a lot of parents of autistic people) do embrace the puzzle piece, but no one\u2019s going to drag you for not using it in deference to the people who are offended by it.<\/p>\n\n\n\n

One symbol in common use by autistic people is the infinity symbol \u2014 in rainbow colors for neurodiversity in general, or in gold for autism specifically. So that\u2019s something to play with. Or you can just leave out symbols all together and find some other way to express your support.<\/p>\n\n\n\n

Look at the positives.<\/h2>\n\n\n\n

Why? Because autism isn\u2019t a straight-up tragedy, dooming autistic people to a lifetime of misery and isolation. We have lives and relationships and interests and things that make life fulfilling. Again, I\u2019m not going to pretend that autism doesn\u2019t present a lot of challenges to some autistic people. (I\u2019m pretty sure I\u2019ve mentioned some of mine once<\/a> or twice<\/a>.) That\u2019s undeniable. But particularly if you\u2019re coming at things from an \u201cawareness\u201d kind of perspective, it\u2019s easy to miss the good stuff. It\u2019s easy to fall prey to the lure of sad stories and inspiration porn, and neither of those serves anyone.<\/p>\n\n\n\n

So don\u2019t forget to highlight good stuff \u2014 the people who are doing and creating and advocating. Not because it\u2019s so great they\u2019re able to do that \u201cdespite\u201d being autistic \u2014 wow, buddy, good for you!<\/em> \u2014 but because it\u2019s great that they\u2019re doing it, period. Autistic people do great things.<\/p>\n\n\n\n

Give functioning and severity labels a pass.<\/h2>\n\n\n\n

Why? Because that\u2019s not actually how autism works. Labels like \u201chigh functioning\u201d and \u201clow functioning\u201d describe how an autistic person appears<\/em> to be managing, not how much work they\u2019re doing to get there. And labels like \u201cmild\u201d or \u201csevere\u201d autism miss the fact that autism actually encompasses a huge spectrum of traits, tendencies, and challenges that manifest differently in every individual. A person might have significant issues with social interactions, or with sensory processing, or with motor function, or with executive function, or with something else, or might have only minor issues with a whole lot of things at once, or any combination or permutation \u2014 none of those things is, on its own, \u201cautism.\u201d<\/p>\n\n\n\n

If you find yourself needing to get into specifics about such things\u2026 Do you, really? Ask yourself why it\u2019s so important to the content you\u2019re creating that you specify that a person is \u201cseverely\u201d autistic. Are you afraid their accomplishments won\u2019t seem like such a big deal if you don\u2019t emphasize their challenges? Are you trying to throw a li\u2019l drama into their story? Trust me \u2014 you\u2019ll be fine without it. (For future reference, though, the autistic community tends to speak in terms of low and high support needs, which is less pathologizing and puts less of a value judgment on the individual and their potential.)<\/p>\n\n\n\n

Engage actual autistic people<\/h2>\n\n\n\n

Why?<\/p>\n\n\n\n

I mean\u2026<\/p>\n\n\n\n

This is a \u201cnothing about us without us\u201d kind of situation. So<\/em> so frequently, actually autistic people get left out of the conversation during what is ostensibly our own month. With the focus so often being on awareness, the featured voices are frequently those of parents and caretakers, speaking on behalf of their autistic loved ones. Try to include diverse representation, giving autistic people the opportunity to speak for themselves. Remember that even though autism is generally associated with boys, it\u2019s actually gender-nonspecific, and that autistic kids grow into autistic adults who continue to be autistic. And don\u2019t forget that just because an autistic person might be nonspeaking, that doesn\u2019t mean they have nothing to say \u2014 their voice is just as valid as anyone else\u2019s, even if it comes via writing or AAC or some other non-vocal method.<\/p>\n\n\n\n

Instead of going straight to Autism Speaks, which isn\u2019t heavy on actually autistic representation, look to groups like the Autistic Self-Advocacy Network<\/a>, the Autistic Women & Nonbinary Network<\/a>, and CommunicationFIRST<\/a> for a wide variety of perspectives from people who\u2019ve been there.<\/p>\n\n\n\n

Happy Autism Acceptance Month!<\/h2>\n\n\n\n

Starting tomorrow, I mean. That gives you a good (checks watch) eighteen hours to look over your Autism Month content and make any necessary revisions before it goes live. Thanks for caring enough to want to do something, and especially thanks for caring enough to want to do it right. You\u2019re one of the good\u2019ns.<\/p>\n\n\n\n

And if you choose to use Autism Acceptance Month as an opportunity to celebrate your autistic employees, may I suggest turning off the fluorescent lights, skipping the onions on your sandwich, and not trying to make eye contact for the entire month. And red velvet cake. That last one isn\u2019t an autism thing \u2014 I just really like red velvet cake, so feel free to celebrate me by sending me one.<\/p>\n","protected":false},"excerpt":{"rendered":"

So, April 1 is the first day of World Autism Month, also known as Autism Awareness Month, also known as Autism Acceptance Month, also known as \u201cWelp, Here We Go\u201d …<\/p>\n","protected":false},"author":1,"featured_media":2807,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[8,26,38,39,79],"class_list":["post-1536","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-the-humanity","tag-ability-and-dis","tag-do-gooding","tag-holiday-celebrate","tag-how-to","tag-writing"],"yoast_head":"\nYour handy Autism Month messaging guide - Caperton Gillett | The Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/capertongillett.com\/blog\/your-handy-autism-month-messaging-guide\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Your handy Autism Month messaging guide - Caperton Gillett | The Blog\" \/>\n<meta property=\"og:description\" content=\"So, April 1 is the first day of World Autism Month, also known as Autism Awareness Month, also known as Autism Acceptance Month, also known as \u201cWelp, Here We Go\u201d …\" \/>\n<meta property=\"og:url\" content=\"https:\/\/capertongillett.com\/blog\/your-handy-autism-month-messaging-guide\/\" \/>\n<meta property=\"og:site_name\" content=\"Caperton Gillett | The Blog\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/capertongcreative\/\" \/>\n<meta property=\"article:author\" content=\"https:\/\/www.facebook.com\/capertongcreative\" \/>\n<meta property=\"article:published_time\" content=\"2022-03-31T19:55:41+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-11-22T00:29:37+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/capertongillett.com\/blog\/wp-content\/uploads\/2024\/11\/puzzle-woman.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"600\" \/>\n\t<meta property=\"og:image:height\" content=\"800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Caper\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@CapeGCreative\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caper\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"7 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/capertongillett.com\\\/blog\\\/your-handy-autism-month-messaging-guide\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/capertongillett.com\\\/blog\\\/your-handy-autism-month-messaging-guide\\\/\"},\"author\":{\"name\":\"Caper\",\"@id\":\"https:\\\/\\\/capertongillett.com\\\/blog\\\/#\\\/schema\\\/person\\\/a8b294ce5e33f2905e82f8435c3650c4\"},\"headline\":\"Your handy Autism Month messaging guide\",\"datePublished\":\"2022-03-31T19:55:41+00:00\",\"dateModified\":\"2024-11-22T00:29:37+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/capertongillett.com\\\/blog\\\/your-handy-autism-month-messaging-guide\\\/\"},\"wordCount\":1425,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/capertongillett.com\\\/blog\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/capertongillett.com\\\/blog\\\/your-handy-autism-month-messaging-guide\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/capertongillett.com\\\/blog\\\/wp-content\\\/uploads\\\/2024\\\/11\\\/puzzle-woman.jpg\",\"keywords\":[\"Ability (and dis-)\",\"Do-gooding\",\"Holiday! 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